And we’re still with the photos rather than the scans. My apologies for that. I’ll get there.
It’s been quite some time since I’ve uploaded a comic for you all. Turns out I had a few in storage that I forgot about. One of the best things about Fibro and CFS – You’re constantly surprising yourself!
You may have noticed it’s been quite some time since I last posted here in my little blog. In case you missed out on the news, I moved house between now and the last time I bothered you all. The new place is wonderful and has made life a lot easier in certain aspects of my life, including my health. I now have have a house with minimal stairs, LOTS of space for when I’m having my bad days, my own personal bathroom so I don’t have to make a trek across the mountains to use the bathroom of a night, and I also have access to a BATH.
It’s amazing how much these little things can make a difference. I’m finding that, now we’re settling in, I can self-manage my health issues better (when they’re manageable, but I’ll get to that), my stress levels have gone down in regards to petty household stuff, and I now actually have the space to move and breathe. I no longer feel like a sardine in a tiny little can.
Manthing is also doing much better now that we’re out of our old house. He especially likes the fact that I no longer have to climb over him to get out of bed when I need to use the bathroom of a night. We can have the double bed with access to both sides 😀 I also no longer have to bother him to put the phone on charge or to pass me things I need since I have my own bedside table. See what I mean when I was saying it’s all about the little things?
So, the new house is great. We live in a nice quiet area. I’m not kidding. We’re actually across the road from a cemetery here, but it’s amazingly peaceful and not at all creepy. Rather than the usual grave stones, we’re across from the family garden section, so our view is of well-tended gardens, sandstone boulders and manicured lawns. Mind you, they DO have the barbed wire on the fence facing IN, so in the event of a zombie uprising, we should at least have time to grab our pointed sticks.
Now, speaking of manageable health issues, the move didn’t go very smoothly. I learned the hard way what my body’s ‘hard’ limits are. In terms of BDSM, hard limits are anything you WILL NOT do under any circumstances. In this instance, my body’s hard limits are being pushed to a certain point, going without rest and being shunted along on energy drinks. I had minimal rest, a major pain flare the week before the move, Shark Week also decided to show up for it’s once-every-six-month visit that same week and I was so run down it wasn’t funny. However, half the people that said they’d offer us help for the move bailed on us and we were left with myself, Manthing, our other housemate and one other friend over the weekend of the move. To put it frankly, it was bullshit, but you’ve got to do what you’ve got to do.
To cut to the chase, I ended up in hospital with heart palpitations, headspins and my body generally giving me a big “FUCK YOU!”. I got strapped to a 24-hour EKG (that was a very un-fun experience, as was trying to wash the contact goo off afterwards), I pushed myself into another massive flare up and basically slept for a week afterwards.
It took me almost two weeks to recover from that stupidity and I’ve learned my lesson in that area. However, my body is still punishing me. Because of that incident, I’ve had a big follow-on Fibro flare up and my Chronic Fatigue is presently kicking my arse. I’m heading into what we call the ‘Sleeping Beauty’ week where my CFS basically renders me bedridden and otherwise useless until I rest as much as my Evil Overlords demand. At the same time, I’ve had to get two ugly ingrown toenails dug out, so my left big toe looks like it lost a fight with a blender (and feels about the same) and my ladyparts are having some kind of spastic attack where I’m now lactating out of just one breast. Fucked if I know why. I’ve had the blood tests and the ultrasounds and they’ve all come back negative for chest-bursters and hormonal reasons, so it seems that my body is just exercising it’s right to hit that next level of crazy.
On top of all of these things, I’ve had some massive financial issues hit me lately. See, I finally got accepted for Disability Pension. Over here, it’s not an easy process at all. It involves more scrutiny than a full cavity search at the airport, and less humanity. I won’t go into details, but the point is that I finally got confirmation that I had been granted the payments. This in itself was a wonderful thing as I wouldn’t have to worry about where my next rent payment was coming from and I wouldn’t have to beg my mother to cover the cost of my medications. The amount I was granted was also enough for us to afford a better place – see: where we live presently. So things were looking up. We moved out, it was fantastic and I was finally getting somewhere. I was paying off people I owed, I was going to be able to afford access to the heated pools at the local gym in a few months and, god forbid, I’d be able to put a bit of money into my business.
Twice they screwed up my paperwork and I hunted them down to make sure they corrected it both times. The third time they screwed me around, they changed my payrate to less than half of what I was getting (and what I was promised!), AFTER we had already signed a 6-month lease for the new property and had moved out. I spent 6 hours on phone calls to various departments, different social workers and generally being degraded by the people on the other end of the phone. Long story short, they had screwed up initially, and had done so HARD. In point of fact they had actually lied to me about the rate I’d be getting. Yes, the one I confirmed twice with them and the one I based my decisions off.
So things are a little complicated now. I’m in a new and more expensive house, I have stuff I can no longer afford, I can’t get certain basic needs met and I’m struggling to make ends meet. On the upside, I still have my pension card so my mother no longer has to pay for my medication. They still cost me about $100 a month, even with the subsidies, but all of my money goes towards that now. The really shitty bit is that Manthing and I sat down and worked this out. My payments were cut because of his wages. If he lost his job and became my full-time carer here, my rate would go back up, he’d get the full amount and we’d actually be bringing in more than he’s earning at the moment. Mind you, he’s earning a dollar above minimum wage which is the stupid bit. I still don’t understand how a Government can allow it’s most vulnerable people to essentially rot when there’s no option for them to return to work. I’m trying to get the business up and running again as quickly as I can after the move, but with all the health issues you can imagine just how easy that is.
So I’m here trying to manage my day-to-day life with Queen HateYourFace throwing a wobbly (yes, I’m referring to my body), trying to balance household finances and not let it eat at me, and on top of it all, because of how run down I’ve been, I’ve also had massive depression issues Depression is one of those stupid things that everyone seems to know about but nobody really seems to know what it involves. It’s like knowing that Mister Smith down the road has this issue where he farts a lot, but you don’t really know why, nor do you bother to question it.
To give you an insight into depression in my case – as I must impress upon you all that it is different for each and every person – imagine all the worst things about yourself, take a picture, and put that over every mirror in the house. You’ve also got this little gnome that follows you around the house and kicks you in your joints (because there is a physical side associated with depression) when you’re not looking. He also spits, swears, points out everything that’s wrong in the house and is the voice in your ear telling you everything you’ve failed at, everything you can’t do and all the things you should be miserable about.
You’re a sick, useless butt head. You smell, you’re ugly and nobody loves you. Yeah, even that guy you’ve lived with for 3 years. He’s sick of your shit. Everyone’s sick of your shit. You’ll never amount to anything because you’re always the sick one and nobody wants to deal with that. Best of all, guess what? You can’t do a damn thing about it!
– Grognar the shitfaced Gnome
So I’m here dealing with all these physical issues beating me up. On top of that, the chemical imbalance in my brain has decided to help tag team me as well. Fortunately I’m really lucky living where I do. I’m one of those privileged people that has access to a reasonable free healthcare system and, because of that, access to a therapist. She and I have done a lot of talking about the issues at hand and have been able to identify key points I beat myself up over. We’ve worked out a plan of attack, per se, and I’m slowly working on kicking Grognar’s hairy little arse out of my house. All the other issues will be dealt with later once I have a stable head back on my shoulders.
I know this has probably been a bit of a marathon read, but for someone that doesn’t normally blog I can assure you that it’s been just as much of an endurance event. As part of my commitment to kick depression’s arse and get my shit back on track, I’ve promise to keep this blog active and see every post as an achievement, whether it’s a written post, a meme or a comic I’ve drawn. I can’t promise a post every day or even every few days, but I will do what I can and I have nothing but the greatest admiration and gratitude for those of you that have followed my blog (all 40 of you. That’s utterly insane!) because it’s you people that have made me commit to getting my story out there. It’s because I know that someone somewhere will read this that I will continue writing, and I’m going to learn to love doing it for my own reasons as we go.
I do actually have a slightly more bright post lined up for you all in the next few days 🙂 I’m also making a point of getting back into drawing my little single-page comics since they’ve been so well received here.
I honestly hope you’ve all been keeping well in my absence and I’d love to hear what you’ve all been up to, even if you’d prefer to message me privately. I’d really love to get to know you all!
Anyhoo, it’s late here and my bed is making sexy eyes at me. I think it’s time I go and get some shut-eye.
It is now Spring here in Australia. What better excuse for a fresh start?
It’s been a while since I last updated this blog. For many reasons, it’s a very good thing. It gave me a chance to think a lot of things over without just simply venting them. It gave me a chance to work out what I’d like to do with this blog and how I’d like other people to relate to it. It also gave me more motivation to actually do something about this.
So, without further ado, I’d like to make this blog a bit of a light-hearted point for people with chronic illnesses to come along and have a laugh. I’d like to be able to have a weekly video blog about my life, my business and my little achievements. Things that made me smile. I’ll still be drawing those comics. Right now, I’m aiming for one a week, or one every few days. Eventually, I’d like to get back into making one a day and hopefully go about improving my art skills while I’m at it. Most importantly, I want to be able to share what it’s like to live in my life. I want to have a place to share my good days and the little bits that make me proud, but I also want a place where I can express frustration, anger or sadness over some of the trials day-to-day life brings me.
I want to be able to connect with the community here and the greater community across other sites, those that are in the same crap boat as I am, those that are curious as to what it’s like living with a chronic illness or those that just want to come along and follow a little bit of my life. I encourage readers to ask questions, to respond to things that resonate with them and to just share something that might make them laugh 🙂
So, I’ve made a deal with myself about this and I very much plan on sticking to it. Who knows where this could lead…